I’m Shahn, a 31 year old disabled genderqueer FTM scorpio, too many words and labels to try and include in one sentence. My dis/ability is still revealing itself to me, though the more I learn, the more I realize I’ve been dis/abled all my life. I’ve got Fibromyalgia, Duchennes Muscular Dystrophy (DMD), Asthma, chronic migraines, Carpal Tunnel Syndrome, Multiple Chemical Sensitivity (MCS), and a variety of mental health diagnoses I’ll bring up when/if appropriate. I’m appealing my latest disability denial, in college to finish my long road to an undergraduate degree, and just stepped down as executive director of The American Boyz, a national FTM organization.
I’ve been focusing on DMD more lately, since that’s the newest diagnosis, coming in February. I learned that had I been born male, DMD probably would have killed me by now, if not much sooner. The MD research community is still coming to terms with the fact that female (and presumably XX) people can get DMD. It took me this long to get diagnosed, though I’ve had symptoms all my life. I expect to be writing more about DMD in future installments, especially as my research on female born people with DMD continues.
I hope to address some real-world nuts and bolts as well as talk about what it means to me to be trans and disabled. How I’ve dealt with the medical industry and how the medical industry has dealt with me. I’ll try my best to answer any questions that come my way, and if I can’t answer them I can probably find someone who can. I’m excited and honored to be a part of trans-health.com.